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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Wednesday, March 30, 2011

5 Nights and counting ...

Today Lilly had pureed banana for the first time. She wasn't too impressed. I could tell she definitely likes avocado better. Besides her daily coconut oil, she's now eating a little more by mouth eat day. (I pureed avocado with breastmilk and froze little amounts in a ice cube tray. Then once they were frozen, popped them into a baggie. Convenient homemade food!)

Just a recommendation - the book Super Baby Food by Ruth Yaron is wonderful, especially if you want to make your baby's food. I first followed this book with my older daughter and she was literally only sick one time during her first three years. (At the core of their diet is "super baby porridge.")

We've been putting Lilly down to sleep at night either on her tummy or side, following what the pulmonologist said last Friday. Ever since then, Lilly has slept easily through the night. She breathes easily and is so peaceful. What a blessing! Because before that, she was waking up every other hour or so, crying and gagging and really upset. Wow. It would be so great if this next sleep study showed that Lilly's tongue was the only obstruction, and that she won't need any extra oxygen while she sleeps.

(Last photo) I saw this dress in the store and it kept screaming at me until I gave in and bought it for Lilly. She was born on the 4th of July so it just seems like the perfect dress for her to wear on her first birthday.

"But I will hope continually, and will praise You yet more and more." - Psalm 71:14


  1. I love the new dress!!! Can't wait to celebrate. :)

  2. Thrilled she is sleeping so much better (I bet you are too!) and that dress is too cute!

  3. The dress is so cute and we are so happy Lilly is sleeping better! I cannot believe she is almost one.

    (Faith's Older Sister)

  4. Oh! That dress is sooo cute!
    I'm going to make your birthday cake,

    Is Mamma's finger better to eat from?
    I also know you LOVE avocado!

    Big sister Tabby

  5. oh my gosh. lilly is the most adorable baby i've ever seen! the video where she was talking to the ceiling fan made my week.

    ohhhhh myyyy i can't get over how cute she is! ah! i'm so happy that your prayer requests are being answered, too. i'll keep you in my prayers. (: