One stop shopping at the hospital

Weight check: 9 lbs. 5 ozs.

Last night Lilly and I checked into the hospital for her "theraputic" sleep study. It was much more entertaining for me this time, because Lilly's tech was a real sanguine. He loved to talk and I got lots of useful information that way. And a lot of completely useless, yet very entertaining information. (He used to be a money manager for different country and rock bands such as Carlos Santana, Hank Williams Jr., Willie Nelson, etc.)

Lilly was very patient during the long hookup process. But when I laid her on her side to sleep, she started crying and I couldn't calm her for a long time. But she finally did sleep and this morning the tech told me the study went really well compared to the last one. Lilly's sleeping on her side completely changed things! The tech said that after some debate, he finally did turn on her oxygen but it was very low and he never had to turn it up to keep her SATs at 100.



Picture # 1 - pre-sleep study. # 2 - hooked up at sleep study. # 3 - end result= crazy hair!

Lilly's first appointment today was with a pediatric surgeon about g-tube placement. (This will be a tube going into her stomach for feeds. Then we can finally be done with the NG tube in her nose. Lord willing, Lilly will eventually be able eat all her food by mouth.)

Next we went to the lab for Lilly to have bloodwork done. Unfortunately her pulmonologist just called and said Lilly's electrolytes are off. Potassium too high and sodium low. There was a problem with her blood clotting so we have to go back to the hospital tomorrow to have the test redone.

Then we went to "precare" and were given instructions on how to get ready for the g-tube surgery. An anethesia doctor came in next and talk to us. He also consulted with a cardiologist anethesia doctor and they decided that the tenative date of April 12 for surgery was too soon. Lilly's infection last week made them want to push it back.

Last stop was radiology where Lilly got a stomach scan. (I'm surprised she's not glowing from all the x-rays she's had!) They needed this done before surgery. That doctor said her stomach looked great. He also did a test for acid reflux and Lilly didn't have any.

Lilly and I got home early this afternoon and scrubbed down to get all the hospital germs off and all the sleep study goop still in Lilly's hair.

"A man's steps are from the Lord; how then can man understand his way?" - Proverbs 20:24