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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Monday, April 11, 2011

Little lady Cleopatra

Weight check = 9 lbs. 13.5 oz.

This morning I got Lilly up with me as usual and found she was soaking wet. When we got downstairs into a little light I saw that her NG tube was out of her nose and wrapped around her fingers. Then I realized that she and her nightgown were completely soaked with milk!

That little sneak! She stayed quiet about what had happened all night so that she could enjoy sleeping without the tube in her nose. She told me she really didn't mind being soaked with milk since she had heard that was one of Cleopatra's beauty treatments.


The weather here today was wonderfully hot! Lilly got to wear a new outfit, curtesy of her great-aunt. The ruffle diaper cover is from this Etsy site: http://www.etsy.com/shop/kuttinup (Check out the adorable pictures of babies wearing the covers!) When my aunt told the woman that made this cover about Lilly, the woman made the matching bow for free. How kind is that?

Check out the middle picture. Lilly is finally starting to stand a lot. Her upper body is slowly getting a little stronger too. She holds her legs straight and firm now. It is a glorious achievement. :)

"Therefore, my dear brothers and sisters, stand firm. Let nothing move you. Always give yourselves fully to the work of the Lord, because you know that your labor in the Lord is not in vain." - 1 Corinthians 15:58

5 comments:

  1. She is getting too adorable! Those thighs and calves look like they came off of 'Miss Piggy'. I'm not sure she should be showing those off with such abandon. I want to pinch them!

    Her great-aunt really knows how to dress little girls.

    Love you, Sneaky Lilly.
    Your Great-Aunt with the good taste!

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  2. Hi Lilly!!

    You look sooooooooo cute in those Rumba Pants!(Or whatever those things are called). I almost wish they were in my size... :)<3


    You can hold your head up, too!
    Yesterday you held it up for about two minutes!
    You can stand up while I sing about twenty songs - or about half of them are chants - all of them are your favorite; Playtime Devotions!

    Love,
    Big Sister Tabby

    P.S. Why are you giving Dad all your Million Dollar Smiles lately?1?!?!?!?!!

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  3. love the fashion show, little granddaughter. and the weight gain is wonderful!
    love,
    mah mah

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  4. cuzin lilly,

    i like your pretty hair band!

    love,
    cuzin clara

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  5. so glad to hear that she is getting strong and standing some now!! :)
    and she looks adorable!

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