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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Thursday, September 8, 2011

Heart cath successful!

Lilly's heart cath went well. The hardest part was getting an IV in her. They finally had to put it in her head. Dr. R, her cardiologist, did the procedure and everything looked good. He couldn't find anything that should prevent the doctors in Florida (Wolfson Childrens Hospital) from wanting to do the surgery. He'll do a report today and FedEx everything out right away. Lord willing, we'll have an answer soon.

The Dr. R did find that Lilly is anemic. So they are getting ready to do a blood transfusion. In the meantime, she just finished having an echo done. The tech kept joking that Lilly was being too fiesty for someone having just woken up from anesthesia. The nurse also had to rig up something to keep Lilly from yanking the IV out of her head. She was really trying and daddy had to hold her arm done during the echo. Little miss firecracker really makes us smile.

She will either be released later tonight or tomorrow. Thank you everyone for your prayers! My husband and I marveled this morning that God has been so generous to us with Lilly.

4 comments:

  1. So glad everything went well! I remember the days of I.v.'s in the head (with my second boy.) It's hard to get through these things, but hopefully, if she's able to get her heart fixed, the days of these procedures will be few and far between! We're praying this is a good night for all of you! May you be protected and blessed and able to go home soon!

    Love, Dana in TN

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  2. So glad all went well & hope you're all home soon!

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  3. Our prayers have been answered again. So happy that all went well.

    Love, Bessie

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  4. That's sooo Lilly! I remember when we went to see Pop the last time ever: Lilly tried to take his cannula out! "Here, Pop, I pity you!" She probably gackled out.

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