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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Thursday, December 1, 2011

Celebrating the first day of December


December 1st! Wow - where has the year gone? Lilly's brother and sister got their annual chocolate advent calendar this morning. Lilly is not jealous - at least not yet - she hasn't seen them. She slept until 1:30 this afternoon! (She averages between 8-14 hours a night. I've gotten the idea that in the Trisomy 18 world that is a huge blessing! Seems that many of these children don't sleep much.)

This evening Lilly got dressed up in her new red velvety dress and snowflake stockings (courtesy of her Mah-Mah), knitted Mary Janes (made by her Aunt K.), and a brand new super soft Santa hat that I bought off Etsy (http://www.etsy.com/shop/hutchinscreekcrafts). She looked very festive. :)

We had a night out to big sister T.'s annual Keepers at Home Christmas banquet. Lilly enjoyed being out and finding new lights to look at. Everyone in our group was happy that she came. They've all been praying for Lilly during our journey with her. We are so blessed to be a part of the group.

"The prayer of a righteous person is powerful and effective." - James 5:16b








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