Weight check = 8 lbs. 5 oz.
As you can see in today's picture, Lilly is sleeping with her eyes cracked open. (There's no sneaking up on her!) She does this a lot. I have a problem with dry eyes so I often think it can't be good for her to have her eyes open a long time without blinking.
You can also see a stripe of redness on her cheek. That was from where the tube was a day or two before. (I'm finding that pure cocoa butter is clearing that up pretty well.)
I took Lilly to the medical supply store to see if they had any recommendations regarding how the tape has been irritating her skin lately. It was funny - when I walked in with Lilly the lady working there said she thought at first I was carrying a baby doll. She was afraid to say anything since Lilly is so young, without her pediatrician's approval. So now Lilly's pediatrician and nurse are looking into it. Not sure I want to try some of the random ideas I've heard about online, especially after seeing some of the products in person.
If you have had a child on an NG tube - what did you use for securing the tube to their face and would you recommend it? I am currently using Tegaderm tape for Lilly. It peels off wonderfully - she doesn't seem to have any discomfort at all.
All this (plus a number of other things) has made me want very badly for Lilly to learn to either bottlefeed or breastfeed well enough so we can just be done with the tube/pump. So lately she has been having daily homeschool lessons in those things. If you would say a prayer that she would learn to eat normally (without burning too many calories!) we would be grateful!
"You will keep in perfect peace all who trust in you, whose thoughts are fixed on you! Trust in the Lord always, for the Lord God is the eternal rock." Isaiah 26:3-4