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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Thursday, January 6, 2011

Article - Boy with Trisomy 18

Just wanted to share an article my aunt in Florida sent me, about a little boy with Trisomy-18. I was fascinated as I can't recall reading about many boy survivors. This little guy is about 20 months old:

http://www.gainesville.com/article/20101224/ARTICLES/101229730

Lilly went to the cardiologist yesterday and all is good. I'll post about that later today when I can make the time to do so.
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3 comments:

  1. odd ballJanuary 6, 2011 at 11:54 AM

    OK! waiting patiently

    ReplyDelete
  2. AnnieJanuary 7, 2011 at 12:14 PM

    There are many surviving boys with full trisomy 18. There is actually a large network of trisomy families on facebook. Tri-med is another place for families, especially to share medical concerns.

    It is very nice to have support from other parents who understand the journey like nobody else. If interested, you could search on facebook for SOFT and ask the administrators to connect you to some trisomy 18 families.

    Here are some blogs about boys with trisomy 18

    http://mylifewithzane.blogspot.com/2011/01/spring-brings-flowers-andchildrens.html

    http://nolansmiracleoflife.blogspot.com/2010/12/18-months-merry-christmas-miracle-boy.html

    http://calebsjourneyfromgod.blogspot.com/

    ReplyDelete
  3. AnonymousJanuary 29, 2011 at 10:25 PM

    May God bless her and her family.

    ReplyDelete

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