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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Saturday, January 1, 2011

Happy New Year from Lilly!


Weight check = 7 lbs. 12 oz.

Happy new year! Lilly has been celebrating today by blowing lots of spit bubbles. (Photo credit - my oldest daughter.)

Lilly's had a busy week. Out-of-town visitors for several days and then we went out of town for several days. Lilly seemed to have enjoyed everyone.

Lilly has been scrubbing her face a lot and is pulling off the tape that holds the tube on her face. The tape does irritate her, but she also has been greatly enjoying putting her fist in her mouth. So last night I decided to use a safety pin to hold her hand down from her cheek. (2nd photo) The pin is from the bottom of her sleeve to her clothing. She can just get her hand in her mouth, but not rub the upper part of the tape.

One present that Lilly got for Christmas was a beautiful smocked dress from B. & A. It is a handmade dress. I have no idea how people smock and am always extremely impressed by it. This dress should be a perfect Easter dress with Lilly, along with a white bonnet. :)

While on our trip, we went to my sister-in-law's bakery and Lilly discovered that she really enjoyed sucking on a spoon. I dipped it in cold water and held it to her mouth and she thoroughly enjoyed licking and sucking on the spoon. Later that day she took part of a bottle. I think she's becoming much more interested in using her mouth lately. She's a little less sure of the swallowing process at times, but can do it. I think (and pray!) she's going to be quiet interested in food when she gets to try it.

Thank you readers for your prayers and support - we are so grateful! It's made such an incredible difference in all our lives. We wish you:

"Grace to you and peace from God our Father and the Lord Jesus Christ." - 1 Corinthians 1:3

4 comments:

  1. Happy New Year, Lilly, from cousin J.!  Always a blessing to read about her progress.

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  2. little granddaughter,
    your bubbles are as good as cuzin clara's!
    love,
    mah mah

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  3. Love to read she is trying to do new things:-)

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  4. I can't wait till we can put that dress on you Lilly!

    Sissy Tabby

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