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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Tuesday, February 7, 2012

Heart ornaments and the gravestone approval

Thank you to the anonymous person that made Lilly this heart ornament (1st picture). Hmmmm ... your handwriting looks like the anonymous person that made the knitted angel last month. ;) Thank you!

Today T's piano teacher brought an ornament made by her daughter. (2nd picture). It is made out of duct tape. Wow! I would have never thought of that. It is a reversible ornament and the other side is mainly the zebra sripe, and has a small pink heart. It is amazing the variety of duct tape that is out there now.

Earlier this afternoon I signed our approval for the design for Lilly's gravestone. (3rd picture - the scanned copy doesn't show up very good but perhaps you can click on it to enlarge it.) The design I initially came up with had a different lily flower and cross. (The one I use on Lilly's "business card" and our return address labels.) Unfortunately that didn't work out. But the engraving company had two different lily and cross pictures so we selected one of those. I'm very pleased with the overall design.

Yet I have to say, it still seems so strange to be doing this kind of thing for my own child. I know this was pretty common in the past. But I wonder if it felt any different for the parents? It's hard to imagine it would.

I keep thinking of our little Lilly's soft cheeks and smile and her pretty eyes. I so look forward to seeing her again one day!

Sometimes when Lilly was in the hospital and often when I did massage on her, we would sing hymns about heaven. I don't know if I've sung this one since I was young but I was thinking about it today:

"Sing To Me of Heaven"

Sing to me of Heaven, sing that song of peace,
From the toils that bind me it will bring release;
Burdens will be lifted that are pressing so,
Showers of great blessing o’er my heart will flow.

Sing to me of Heaven, let me fondly dream, Of its golden glory, of its pearly gleam;
Sing to me when shadows of the evening fall, Sing to me of heaven, sweetest song of all.

Sing to me of Heaven, as I walk alone,
Dreaming of the comrades that so long have gone;
In a fairer region ’mong the angel throng,
They are happy as they sing that old, sweet song.


Sing to me of Heaven, tenderly and low,
Till the shadows o’er me rise and swiftly go;
When my heart is weary, when the day is long,
Sing to me of Heaven, sing that old, sweet song.


(You can hear the tune for this hymn at: )


  1. one of your favorite songs was, "This World is Not My Home." remember?

    1. She sang it to Lilly while doing therapy and massages and stretches some.