It's 7:30 p.m. and we're still awaiting the results of Lilly's echo from today.
It's been a calm day. Wet noodle Lilly perked up some today. She slept all day until 5:00. During the day she pretty much only woke up when her tummy hurt and then had a dirty diaper. (They started adding formula back to her breast milk last night, and it just doesn't make her tummy as happy as plain breast milk.)
The hospital dietitian came in to see us. She said Lilly is big enough that we need to up her Mls of milk through the pump from 20 Mls an hour to 22. And then every 2 weeks increase it again.
We also got a visit from the speech therapist. And no she's not teaching Lilly how to talk. She helps with feedings. I was glad to talk with her. I told her that I had ordered Lilly a Habermann feeder to try since she had done so well drinking from her syringe. (A big thank you to my friend C.S. for giving me Habermann information shortly after Lilly was born. I saved it and then it was right there when I needed it.) She was really glad to hear that as she was just getting ready to suggest it. She said she would find one and then bring it in tomorrow and work with Lilly and I with it. She wants me to use that some with Lilly before trying solids. (I had told her I'm ready to try rice cereal and avocado with Lilly.) Because Lilly doesn't hold her head up regularly and has poor muscle tone, we talked about feeding positions for when she does try solids. And the consistency shouldn't be too runny nor too thick.
She also gave Lilly some homework. She brought Lilly a preemie sized pacifier and told me to offer it to her and report back on what Lilly did with it in her mouth. We've worked on that a couple times since Lilly woke up. She seems to like biting it. She also pushes it out with her tongue a lot. The last time we tried it, she sucked it for a minute. All of this is good. All things to get her feeding by mouth and off the NG tube again.
Yesterday I felt a little stir-crazy in this hospital room. I ended up pacing a lot. I am catching up on reading but feel I can only do so much. Today I decided I needed to do things differently. This morning I did "games" like reading a page, then doing 100 of my stomach exercises. That kept me busy awhile. Then I remembered something my dad said once. He said if he were ever in a place like prison, he'd keep busy writing. I really enjoy writing so I spent 3 hours this afternoon writing drafts of future blog posts of a series I've been wanting to do about my pregnancy with Lilly. (I'll post those once this hospital ordeal is over.) Anyway, it was extremely gratifiying to do and helped the time pass. I also find I have a lot more respect for my husband as he stayed with Lilly 22 days straight at the Fla. hospital, while I got to at least leave at night. Now here he's going to work during the day and coming back here for the night. I haven't left here since Lilly and I checked in Saturday. The days are all one blur.
"My soul, wait silently for God alone, for my expectation is from Him. He only is my rock and my salvation; He is my defense; I shall not be moved. In God is my salvation and my glory; the rock of my strength, and my refuge, is in God. Trust in Him at all times, you people; pour out your heart before Him; God is a refuge for us." Psalm 62:5-8