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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Thursday, February 17, 2011

A new and improved Lilly

I decided that Lilly has practiced drinking milk through the dropper long enough, so today we spent about an hour trying the Habermann feeder. (Special kind of bottle.) It was slow going because Lilly chews rather than sucks. But she did drink half an ounce. We'll keep practicing every day. We so want her to be able to eat by mouth again.

(second picture) I tried sitting Lilly in the high chair, with it reclined back. She wasn't too impressed. I wasn't either - I couldn't really get her head propped up well.

Lilly saw her regular pediatrician today. They were so happy to see her there. I told them Lilly was "new and improved." Meaning she is SO MUCH happier, active, and content ever since being home from the hospital. Lilly is now 22.5 inches tall. She checked out well at her appointment.

Sadly Lilly's Pop isn't doing as well as she is though. He had a slightly better day today. But overall there is still very little change. Please continue to keep Pop in your prayers. (We thank you!)

"The LORD is good, a refuge in times of trouble. He cares for those who trust in him." - Nahum 1:7


  1. I love the picture of Lilly with the bottle. Her little face looks so pretty. That is a good angle for her.

    Lilly has many fans who need to have her on

  2. When you get big, Lilly, you can sit next to me at the table!