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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Tuesday, February 1, 2011

Lilly the wet noodle

Lilly has had an uneventful afternoon and evening. Yay! She has pretty much slept all day. She really needed to. (God has answered that prayer!) She's so tired she's like a limp wet noodle.


  1. Im praying Lisa... Praying and praying for Lilly the FIGHTER for a glorious day! peace and love from Colorado!!!

  2. We have Baby Lily in our prayers at the Mandarin Church of Christ...what a wonderful story and blessing. May the Lord continue to strengthen you all. Amy Ernest

  3. I can't wait for the return of........"SNEAKY LILLY"!
    Happy Shisshy

  4. Thank you dear Father in heaven