caption - title

The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Saturday, February 5, 2011

Back on oxygen

Lilly is back on oxygen. It's only the smallest amount. But every time she gets into a deep sleep, she sets the alarms off. For a minute or two at a time her breathing is just too shallow for the nurses to feel comfortable. The nurse did say that since it is only a tiny amount, maybe Lilly could just be released with the oxygen. The plot thickens ...


  1. We won't stop praying. ((Lilly))

  2. Keep fighting dearest one. ((xxLillyxx))

  3. Love and prayers from the other side of the world to you all!!

  4. Praying for you today and always!!!! So frustrating when you get your hopes up:( The night before Sid was released i got to stay in a parent over night room. well he had a bad night that night with bradys and desats and we didn't get to go home that day. I so understand that hope deflating. That day will get here...and hopefully it will be today:)

  5. Come ON Lilly! Come on!