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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Saturday, February 5, 2011

Back on oxygen

Lilly is back on oxygen. It's only the smallest amount. But every time she gets into a deep sleep, she sets the alarms off. For a minute or two at a time her breathing is just too shallow for the nurses to feel comfortable. The nurse did say that since it is only a tiny amount, maybe Lilly could just be released with the oxygen. The plot thickens ...
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5 comments:

  1. NikkiFebruary 5, 2011 at 8:09 PM

    We won't stop praying. ((Lilly))

    ReplyDelete
  2. CarolFebruary 5, 2011 at 8:14 PM

    Keep fighting dearest one. ((xxLillyxx))

    ReplyDelete
  3. AnjaFebruary 6, 2011 at 6:49 AM

    Love and prayers from the other side of the world to you all!!

    ReplyDelete
  4. ChadFebruary 6, 2011 at 7:52 AM

    Praying for you today and always!!!! So frustrating when you get your hopes up:( The night before Sid was released i got to stay in a parent over night room. well he had a bad night that night with bradys and desats and we didn't get to go home that day. I so understand that hope deflating. That day will get here...and hopefully it will be today:)

    ReplyDelete
  5. TabbyFebruary 6, 2011 at 9:12 AM

    Come ON Lilly! Come on!

    Tabby

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