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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Saturday, February 5, 2011

A setback

Lilly had a dip in her breathing early this afternoon. It was brief and did not require oxygen. But it was enough that the doctor felt hesitant about releasing her today. Please pray that Lilly will maintain good breathing levels. If she does, then the doctor said she'd be released first thing tomorrow.

OK that was disappointing news. (I actually felt like I'd been punched in the gut!) But I certainly don't want to take Lilly home if it's not safe. My husband is going to go home though, and will pick up our other children on the way. Yay! Then, Lord willing, tomorrow they will come pick up Lilly and I. Can't wait to see all those smiling faces! (Thank you mom for taking care of the children for a week. It was nice not having to worry about them.)


  1. Oh dear... better safe than sorry!! xxoo

  2. Sorry to read this. I just read the previous message on Nikki's FBwall that Lilly would probably be able to get home today and now this little bubble:-(
    Patience is a difficult lesson/road to learn, but The lord is our shepherd and He will guide us well. Have faith that He will help Lilly any way possible. ox

  3. GO GO Lilly! You can do it!
    ... Just don't have any more breathing problems. :(