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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Saturday, June 4, 2011

Happy 11 month birthday, Lilly!

Lilly is 11 months old today! Happy 10 month birthday to Lilly's friend Giuliana! You go girls! :) Keep beating the odds.

Lilly started out the day with some congestion and spit ups but after a long nap seemed fine and was happy and smiling a lot this afternoon and evening.

Yesterday Lilly had FIVE appointments and today was busy. I'll blog about the appointments asap.

I heard today from the mama of Jordan, a little angel girl that had Trisomy 18. Jordan only lived 3 days. Today would have been her 2nd birthday. Her family was celebrating and remembering her with angel food cake. I thought that was such a sweet tradition. Jordan is now free of Trisomy 18 and is perfect.


"And God will wipe away every tear from their eyes; there shall be no more death, nor sorrow, nor crying. There shall be no more pain, for the former things have passed away.” - Revelation 21:4

3 comments:

  1. Carol in New ZealandJune 5, 2011 at 12:39 AM

    Happy Eleventh month to dear-little-sweetie you!!!! And love and hugs to all your wonderful family.

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  2. happy 11 and looking forward to birthday number1 year. cuzin josiah may even come to your party!

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  3. Happy birthday, Lilly! I am looking foward to next month - YOUR FIRST BIRTHDAY EVER!!!!!!!!! - Well, not counting 11 months of "month" birthdays. Doesn't mean that it's not still EXREMELY exciting! I can't wait to help Mamma decorate the house for the 4th July bithday party!
    It's a true blessing - continue to shock the doctors; With your happy "bright and chipper" attitude!

    And continue to do your 'Gackle gackle gackle' talking to keep Dad, H., Mamma and I excouraged!

    Love your blessed big sister,
    Tabby

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