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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Friday, June 24, 2011

Suck that thumb, Lilly!


Several times this week Lilly has opened up her right thumb and managed to get it into her mouth. This is so very exciting! Lilly has never before unclenched her forefinger and thumb on her own. Plus, if she does begin sucking her thumb then that would be so good for feeding for her to have her suck instinct back.

We are in the process of getting Lilly set up with an occupational therapist to come to the house to work with her. Physical therapy is going very well. So we hope that occupational therapy will really benefit Lilly too. That therapist would be working with Lilly's hands and on fine motor skills.


Lilly is getting pretty good at wacking the animals hanging over her bouncy seat. She did that a lot this afternoon. She also was able to grab the loop under the frog hanging in the middle a couple times, and pull it hard enough for the music to play. Whenever she did, even my 2 year old would stop and clap and cheer for her. She seemed so happy doing that.

"When I consider Your heavens, the work of Your fingers, The moon and the stars, which You have ordained, What is man that You are mindful of him, And the son of man that You visit him? For You have made him a little lower than the angels, And You have crowned him with glory and honor." - Psalm 8:3-5

5 comments:

  1. Love the pics! Goooooooo Lolly-Lilly!

    T.

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  2. We keep the prayers going you keep growing Baby Lilly. Have a wonderful day!

    ReplyDelete
  3. You go, girl! Awesome job, Lilly! It's a blessing to have a great big brother!

    ReplyDelete