Off the pacemaker!

Lilly had a great night last night. She slept through it. They continue to wake her each morning around 5:00 a.m. for a chest x-ray. Then she went back to sleep. Dr. C, the surgeon, came to check her this morning and said she was "making progress."

Lilly's pacemaker was turned off this morning and she has not needed to go back on it. They took out her catheter and a sensor that had been on a toe monitoring her skin temperature. High flow oxygen is at 30%.

She's off the heavy duty pain medications. If she continues to stay stable, she'll be moved out of the PICU in a day or two.

Lilly just had an EKG. It really made her angry to be woken up. Actually though it was nice hearing her cry. Good for her lungs. She's got a lot of junk in her chest that periodically chokes her so we have to suction her mouth and throat out.

Busy day - now Lilly is having an Echo. She's not crying anymore but seems relaxed. The surgeon came in and watched and said her heart function looked great. There's still a narrowing where her pulmonary artery band was but he said it's nothing to be concerned about. That should heal in time. Lilly's heart remains thicker than normal - that was a result of the holes. Lord willing, that will heal over time too.

Oh yay - the nurse is now pulling some more lines out of Lilly! Still got plenty left but every one out is progress!