caption - title

The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Wednesday, November 9, 2011

Video: Enough already!

Today has been pretty quiet so far. Except for when the nurses come in to get Lilly's vitals or turn her to her other side or change a diaper or ...

Every time it makes Miss Lilly MAD! (Thank goodness we don't have temper problems with her at home!)

Here's a little video of Lilly, calmed down after a tantrum, but still having a few grievances to share:

Posted by at
Labels: ,

3 comments:

  1. Susan BakerNovember 9, 2011 at 9:07 PM

    Awwwww.... poor Lilly. You can hear a little bit of gurgling when she cries. Will be praying that her lungs clear up!

    ReplyDelete
  2. MyAwesomeOliveShootsNovember 10, 2011 at 7:45 AM

    I couldn't have said it better, Miss Firecracker! You tell them! Keep using those lungs! We are praying for you and your sweet family!

    Love,

    The W-H's

    ReplyDelete
  3. Kim HNovember 10, 2011 at 5:03 PM

    Just makes me wish you could pick her up and hold her! Poor thing. Hopefully these days will be behind you soon. Keeping y'all in our prayers!

    ReplyDelete

Subscribe to: Post Comments (Atom)