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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Wednesday, November 16, 2011

The cat's got Lilly's tongue

Weight check = 12 lbs. 13.5 ozs.

Lilly has been happy to be home. She often smiles at us. However, she's been very quiet! Very little talking - it's rather strange! She won't even babble for the ceiling fan. One thing I've noticed is that whenever she gets home from a hospital stay, it's like she temporarily forgets about doing some things. This time it's talking and laughing.

When I first was changing Lilly's clothes, after the hospital, she would cry. As gentle as I tried to be, it must have just hurt. Today she seemed OK with it though.

She FINALLY had a BM today (never did have one at the hospital when we were pumping all that stuff into her). It was very traumatic. Her breathing got so wacky I was starting to wonder if I needed to call 911. But she finally got that under control. It must have taken an hour to get her completely settled down.

Lilly still gets choked on stuff coming up periodically. Usually after sleeping. Being on her tummy seems to be the most comfortable for her. But overall, she's doing great.

In today's first two pictures, Lilly is sporting a pink hat made by Z.V. and M.N., two 5th graders at the school my husband works at. Wasn't that sweet? The girls did a very good job. :)

The last picture is another gift my husband brought home for Lilly yesterday. It is from S.B. - a school mom that had noticed the kind of old style of dresses that I love to dress Lilly in. It is a Polly Flinders dress about 45 or 50 years old! This is the same brand and style of the baby dresses of mine that Lilly has worn. This particular dress is a little big, but should fit Lilly just right by spring.

We continue to be amazed and so touched by the gifts that are given to Lilly and our family. More "Lilly blessings!"

As wonderful as all these earthly gifts are though, here is a promise from Jesus that is even more amazing:

"Which of you, if your son asks for bread, will give him a stone? Or if he asks for a fish, will give him a snake? If you, then, though you are evil, know how to give good gifts to your children, how much more will your Father in heaven give good gifts to those who ask him!" - Matthew 7:9-11

5 comments:

  1. That was soo scary!!

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  2. here's looking forward to a better day. ((Lilly))

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  3. I AM SO SORRY THAT LILLY HAD SUCH A TRAUMATIC TIME.

    MAYBE YOU SHOULD HAVE JUST TAKEN HER INSIDE OF MAH-MAH'S HOUSE. (and you know what I mean)

    Love, Shisshy

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  4. P. S.

    I looked inside Oliver's mouth and all over and I couldn't find Lilly's tongue. So, unless he hid it, he is not the cat who got Lilly's tongue.

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  5. Aww Lilly loves ceiling fans too? Ali always loved watching them! Thanks for reminding me of that. :-D

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