Phone call from Lilly

This morning Lilly's siblings and I received an extra special phone call. Lilly was on the other end! She "talked" to us for a few minutes and we all talked back. That was a good sign! When she talks like that she is feeling pretty good.

Last night Lilly had a number of outbursts from pain before finally settling down to sleep.

Lilly has managed to stay off the pacemaker since yesterday so this morning, they pulled the pacing wires out of her. One side of the wires had little hooks which were hooked into her heart. But they just pulled them right out - right through her skin! She didn't care too much for that.

Lilly's potassium levels continue to be low. But that is attributed to the Lasix she is on.

The surgeon thought Lilly's early morning chest x-ray looked "a little fluffy" and wondered if it was from fluids. So the x-ray was repeated a couple hours later. That one looked good. (Lilly has been having a problem for the last few days where she suddenly begins choking on mucus so perhaps that's what it was. It's hard enough for her to get stuff out, because of her low muscle tone. And we haven't been able to really do the back and chest patting like we normally do every day to help break up stuff.) The surgeon instructed the nurses to keep Lilly's bed at a 45 degree angle.

When I got here this morning, Lilly was awake and talking to her daddy. She then greeted me. We had a little conversation before she drifted back off to sleep.