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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Monday, November 21, 2011

Lilly plays the I'm-going-to-get-your-sugar game

In the days right before we drove to Florida for Lilly's heart surgery, Lilly began playing a game with us.

The first time it happened, my husband was holding Lilly and kissing her neck. Lilly often smiles when we "get her sugar" (kiss her neck). He would tell her he was going to "get her sugar" then kiss her neck a couple times, then lean back and look at her face. She would smile back. After a couple times, she suddenly began to turn her face to expose her neck after each time he kissed her. We marveled but weren't sure if it was really on purpose or just a coincidence.

Then the next night, I was playing with Lilly before bed and she began to do this with me. How exciting! She really was doing it on purpose! (For those that don't understand why this is so thrilling to us - it is because Lilly is very mentally and physically delayed. We have no idea what to expect from her, so when she does new things it is just so exciting.)

I was very happy when Lilly again began turning her neck yesterday, in anticipation of me getting her sugar. We're still waiting for her to remember how to laugh, since we've been home. But she remembered her sugar game!

"There is surely a future hope for you, and your hope will not be cut off." - Proverbs 23:18

6 comments:

  1. She's getting good! :-D

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  2. Well, yeah, who doesn't want to get the sugar? She's a smart cookie!!

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  3. *tears of joy for you* xxx Carol in New Zealand

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  4. She grows more precious...daily!!!

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  5. I'm glad to see that Lilly is home and her recovery is going well! Have a Happy Thanksgiving!

    Rima in Cary, NC

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