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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Sunday, November 6, 2011

Sleep at last

Lilly had a very hard night last night. She was quite upset off and on and for a couple hours straight at one point. The nurse gave more pain killers, tried re-positioning her, and checked all her lines.
She finally settled down in the wee hours of the morning, thank God, and has mostly been sleeping well ever since. She needs it! She had major surgery and then was mostly awake for 30+ hours.
The doctors are very pleased with Lilly's progress. The floor doctor said, "Her [heart] rhythm and numbers look great. For 36 hours post-surgery she is doing very well."
Lord willing, Lilly's progress will continue.

5 comments:

  1. Carol in New ZealandNovember 6, 2011 at 1:36 PM

    Hello Lilly sweetheart. So good to see you sleeping. Hugs and kisses from Carol in New Zealand (((XXX)))

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  2. so thankful you are finally sleeeping little granddaughter. wishing you sweet dreams.
    love,
    mah mah

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  3. Thankful the surgery was successful. Pray for her complete recovery and return home. Its a beautiful picture of her being comfortable.

    Love
    Katie

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  4. So excited about "Little Firecracker's" progress! Praying that she is going to do so well that she can leave and go home very soon! She looks so wonderful! Hope you parents are able to get some rest, too! Hope you all are having a good day! Can't wait for next update!

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