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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Friday, November 4, 2011

Surgery has begun


Lilly was checked into the hospital by 7:45 this morning. I was given a little hospital gown to change her into - it has pink elephants and dinosaurs on it. She was weighed and her vitals taken and then we were sent to the waiting room. After we sat down an older woman came over and said how much she loved babies and asked about Lilly. After talking a few minutes she asked if she could pray for Lilly! She called her daughter over and grabbed our hands and prayed over Lilly. Another "Lilly blessing."


Soon after we were taken to another area and met Lilly's anesthesiologist for the surgery. He remembered all of us from last year and was happy to see how much Lilly had grown. In the course of our conversation he said that her labwork from Wednesday had shown an issue with her thyroid, but that it wasn't enough to postpone surgery. He said we would work on the thyroid issue after she is recovering. (I don't know what the "issue" is yet, other than something being too low.)
Lilly was taken from us a few minutes before 9:00. We got word at 11:00 that all her lines were in place and surgery had begun. I was impressed to hear that they didn't have to put a line in her head. Instead she has three - one at the top of each thigh by her groin, and one in her jugular (neck).
Surgery may be over as early as 2:30.

This last picture shows an upclose of Lilly's "fall risk" band on her leg. It seems silly she has to wear it - she certainly isn't walking! I told them she can't even roll over all the way. But it's required so we all just laughed. Lilly didn't think it was funny though - she kicked it off, along with another band, just to show us she could.

3 comments:

  1. Yay Lilly, kick off those bands! We are praying surgery and recovery goes well. And you look beautiful in your hospital gown!

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  2. Oh, my Lilly, I am wanting you! I hope you're amazing them people!

    That is the cutest gown I'll ever see!

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  3. cute toes! Keep Kicking girl!~!

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