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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Wednesday, November 23, 2011

Cardiologist appointment update



Height = 24.5 inches

Weight = 12 lbs. 15 oz.


Today our whole family proudly took Lilly to her first post-surgery cardiologist appointment. Dr. R, her cardiologist, ordered an echo done and was extremely pleased with the results.


Lilly's heart is functioning normally! How very very exciting to hear. :)


Her left and right ventricles are still thick, which happened in response to the holes she had in her heart. Perhaps now that the holes have been patched, and the pulmonary artery band removed, they will eventually become more normal. There is still a narrowing where the pulmonary artery band was. That should self-correct. But if not, then eventually Lilly will need a heart cath where they will insert a balloon and inflate it in that area.


Dr. R said to keep a check on Lilly with the pulse ox as he thinks she should be off the nighttime oxygen now. And once she has been off it for about a week, then we can stop giving her Lasix.


We knew things looked good when Dr. R said Lilly didn't need to come back for 4 months!


"A happy heart makes the face cheerful . . . ." - Proverbs 15:13a

3 comments:

  1. YAY, great news! Hope you all enjoy a Happy Thanksgiving!

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  2. DON'T WE ALL HAVE A WONDERFUL REASON TO BE ESPECIALLY GRATEFUL THIS THANKSGIVING?!

    SHISSHY

    ReplyDelete