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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Monday, July 1, 2013

My Thirty One gifts fundraiser for SOFT and The Lilly Memorial Project

UPDATE:  Thirty-One link is corrected below.

Today is July 1st!  My home is decked out in red white and blue both to celebrate July 4/Independence Day - and . . . Lilly's 3rd birthday!  Of course Lilly is officially celebrating with Jesus, but our family will be doing things to remember our little angel girl.

Yesterday I "gave" Lilly her birthday present.  I have been buying her a July 4 themed figurine for each birthday.  Here is this year's - a patriotic bear with a firecracker:

Last year I learned about Thirty-One gift products.  As they have a great variety of bags and organizers, I was delighted.  I love useful things!  I've since gotten a collection of their products, obtained through great sales, which I will be sharing throughout this month.

photo:  Thirty One's "organizing utility tote"  - embroidered with "My Angel Lilly" - holds many of my Lilly related and project files

From today, July 1, through Saturday, July 27, I am hosting an online party for Thirty-One.  This party is a fundraiser!  All earnings I receive will be split in half.  Half will be donated to  SOFT (Support Organization for Trisomy), a group that helped us so much during Lilly's life and still are supporting us.  The other half will go for my own Lilly Memorial Project, in which we are reaching out to other angel families, spread trisomy awareness, and do other helpful projects in Lilly's memory.

Please consider ordering something and know that you will get a great product and some of that money will go to excellent causes.  Our Thirty One consultant is Nikki.  Jump to our party page by clicking , click on "My Parties" on the left, and then clicking on "The Lilly Memorial Projects Thirty-One Fundraiser."  

For every $31 you spend this month, you can get 31% off any other item.

If you have any questions, email Nikki at: or email me at:

If you would like a printed catalog, please just let Nikki or I know.

I will be sharing more about Thirty One products and how I use them in the coming days.  :)


  1. Lisa, I just received your thank you card for participating in your "31 gifts" fundraiser and all I can say is "wow!". How nice of you to take the time to send such a thoughtful and personal note to someone you've never met! If you care to know, I wanted you to know how I came across your fundraiser in the first place. :-)

    I am a newborn nurse in Texas and I admitted a baby that was having issues right at delivery. As I continued to assess her, I began to suspect she may have Trisomy. I have seen a few infants with Trisomy as a NICU nurse. As I researched Trisomy that night, I came across Lilly's site. I saw the fundraiser and wanted to do what I could to help.

    I had just Googled "Trisomy" and came across your site. I'm sure that it is a very terrifying and confusing time when parents are told their baby has "Trisomy". I have seen parents eyes glaze over as the doctors are throwing out all this medical terminology trying to explain the condition of their sweet baby. I can only hope that in searching for answers, parents come across your site because I love how it shows the human side of Trisomy, not just the clinical side. I'm sure your site would be a source of comfort to those parents.

    And lastly, I wanted to thank you for sending the card with Lilly's beautiful face in the arms of Jesus. I plan on keeping this card in my nursing bag always! As you may know, nursing can be a thankless job, and your thank you card (although not related to nursing) helps me to remember that the little bit that I do for my patients and their parents can and does make a difference.

    Thank you for restoring my faith in myself and what I do.....all just by taking the time to send a simple card. :-)

    Thank you Lisa!

    May God bless you and your beautiful family!
    Donna D., RN

    1. Thank you Donna for leaving this comment! It is SO encouraging to me. I do hope and pray Lilly's information will encourage other Trisomy families. Yes these children can be hard work and it has scary moments but it is SO worth it! I want Trisomy families to think of HOPE when they learn about their babies. We have had some wonderful nurses during Lilly's doctors appointments and hospital stays. Especially PICU nurses. I remain grateful to you and the other hardworking, caring nurses out there! God bless you!