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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Saturday, February 5, 2011

Back on oxygen

Lilly is back on oxygen. It's only the smallest amount. But every time she gets into a deep sleep, she sets the alarms off. For a minute or two at a time her breathing is just too shallow for the nurses to feel comfortable. The nurse did say that since it is only a tiny amount, maybe Lilly could just be released with the oxygen. The plot thickens ...

5 comments:

  1. We won't stop praying. ((Lilly))

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  2. Keep fighting dearest one. ((xxLillyxx))

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  3. Love and prayers from the other side of the world to you all!!

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  4. Praying for you today and always!!!! So frustrating when you get your hopes up:( The night before Sid was released i got to stay in a parent over night room. well he had a bad night that night with bradys and desats and we didn't get to go home that day. I so understand that hope deflating. That day will get here...and hopefully it will be today:)

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  5. Come ON Lilly! Come on!

    Tabby

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