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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Wednesday, May 18, 2011

Alarming alarms

Over the last couple hours, Lilly has been setting off her alarms. A lot. Heart rate dropping some, breathing dipping too much. We don't know why but I'm trying not to panic. This was the day we were talking about leaving! The night nurse was worried she might be getting sick again. Thank you for praying and please don't stop!
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1 comment:

  1. Cindy234May 18, 2011 at 9:32 AM

    Prayers for little Lilly!
    Have been following your blog for several days now. I can't even imagine how hard this is! Love her smiling little face!

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