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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Sunday, May 15, 2011

Sunny Sunday

Today was an incredibly quiet day. The best kind you can have in a hospital! Such an amazing contrast to last Sunday when I didn't know if Lilly would live. But God is faithful and is continuing to answer the prayers of His people.

Lilly spent most of the day napping to make up for yesterday fussiness and lack of sleeping. She work up after I ate dinner tonight so I got her up and held her for a couple hours. I got a couple small smiles, but she was really bad with making eye contact tonight. I dressed her in a clean snap up shirt and socks and re-tied her hair ribbons.


Lilly finished up her antibiotics today. They switched her back to her Enalapril from a heavier drug they had been using. She got the big IV that was in an artery at the top of her leg taken out. And now they're getting ready to take her off the high-flow oxygen and put her on the regular oxygen like she's on at home.


Thank you to everyone that has taken the time to leave comments or send me an e-mail. It's so encouraging to be able to hear from people in the "outside world".

"Two are better than one, because they have a good return for their work: If one falls down, his friend can help him up. But pity the man who falls and has no one to help him up!" - Ecclesiastes 4:9

4 comments:

  1. Praying that Lilly will amaze the doctors and will be able to go home soon!

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  2. Praying she will continue to improve & come home soon!

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  3. Thinking of you all and praying for Lilly! It's so hard being the hospital, especially on a weekend with it being quiet and not much activity.

    We have you all in our thoughts and prayers always. Hoping Lilly gets to go home soon!!

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  4. More praying from the 'outside world'! Go home soon, Lilly!

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