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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Thursday, May 12, 2011

Extubation successful!

The extubation went smoothly and Lilly is now breathing well with an oxygen cannula in her nose. They will work at turning the oxygen down throughout the day. Lilly kept working her mouth after the tube was out and moving her jaw funny like she thought "what happened to that thing?" She also had some things she had to tell me, now that she can talk again. Though with the first vocal noise she made she looked like she surprised herself. Now she is napping.

God is faithful ... God is kind ... all the time!

UPDATE: Please keep praying that Lilly will breathe well. We don't want her to have to go back on the breathing tube. They are still hearing some "crackling" in her chest.

2 comments:

  1. We continue to lift your family up to the Lord! You are all amazing. Lilly is such a fighter and so dearly loved. What a precious gift from the Lord.

    Cindy W-H

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  2. Yay, God!! I'm glad to see this good report!

    Rima in Cary, NC

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