caption - title

The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Tuesday, October 19, 2010

Assistant Professor Lilly

Weight check = 5 lbs. 13 ozs. YAY!!!!

"Those who sow in tears
Shall reap in joy." Psalm 126:5

Other good news today - baby G. (another trisomy 18 baby girl) is now off the ventilator. (She had open heart surgery a few days ago.) We love those survivor stories!

Lilly and I are continuing to play the bulb syringe game. She is still quite congested at times, and breathing labored some.

Yet inspite of her cold, she is taking her job as assistant professor quite seriously. We're finally back in the full time homeschool groove this week and Lilly has been helping me out, in between naps, with teaching spelling, geography, and science. Today we started Greek and she really liked the alphabet song. She already knew the Jesus is the "alpha" and "omega" (first and last letters of the Greek alphabet) so she was glad to fill in all the in between letters.

6 comments:

  1. She does look a little "weak eyed" in that first picture... the way I feel when I have a cold. Maybe she will be over it soon.
    She will be the smartest kid ever, learning all this stuff so early!

    ReplyDelete
  2. she looks like she's listening to your every word:) i bet it feels nice to get back into the routine!!!!

    ReplyDelete
  3. WOW...the Greek alphabet! I am impressed!

    ReplyDelete
  4. I love, love, love the top picture. She looks so alert and stimulated!

    3 more ounces, Silly Lilly, and it will be a milestone.

    Miss you, Baby.

    ReplyDelete
  5. little granddaughter, you are looking GOOD!!! i loved seeing big sister tabby rose reading to you on monday. hope it was something exciting.

    ReplyDelete