caption - title

The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Monday, October 25, 2010

Christian-care

Weight check = 5 lbs. 15.5 ozs.

Here is Lilly sporting a new knitted headband made especially for her by A., sweet young woman. Yesterday at church, I had told A. that it was hard to find headbands small enough for Lilly and so she offered to try and knit one. It turned out so soft and cute!


Lilly is in my lap right now making the cutest little talking noises. She sounds like a cat at times.

My family does not have traditional health insurance. We are part of a very affordable Christian medical needs sharing group called Samaritan Ministries. That means that when we go to the doctor for something, we pay up front (as self pay - and we get amazing discounts I might add.) Then we submit our itemized receipt(s) to Samaritan Ministries' office. Shortly after that we began receiving checks from people in the group in amounts between $100-$300. We receive enough checks to cover the amount we submitted. (We also are instructed each month on who to send our check to.) It's a fantastic system of people helping people and thankfully we're allowed to continue it, at least for now, under Obamacare. ( www.samaritanministries.org )

One of the nicest things about belonging to this group is that people pray for what you need. Almost every check we receive has a card or note with it with encouraging words and/or scripture. We are so grateful for those many, many prayers from other group members going up for Lilly!

Here is an example of a note received the other day. "Behold, I am the Lord. . . . Is anything too difficult for me?" - Jeremiah 32:27 The person that sent that note added: "It's not the size of the mountain but the strength of the mountain mover."

Notice in today's last picture that "sneaky Lilly" has returned - she kept kicking her sock off again today. Her brother saw her do it several times and it really made him laugh.

8 comments:

  1. Oh so good to see her so wide awake and alert. Looks like she is ready to play. I can't decide which pic I like the best but I think it is the last one. Just adorable.

    ReplyDelete
  2. i love the pics too. that was such a great idea of the young woman from your church. love the headband!!!!

    ReplyDelete
  3. 5 more ozs and we have a party!and it will soon be 4th of Nov and we have another bday party.
    Lill can wear her new headband and go barefooted for the party :>) :)
    tabby can blow the candles

    ReplyDelete
  4. no, no, I'm to eager...its 11 ozs but she will do that in a whizzz

    ReplyDelete
  5. lilly, how amazingly filled out you looked yesterday! fat on your thighs, bottom, and a plump little face! and you were so alert and were trying hard to tell me something. the NG tube might not be comfortable but it's sure doing its job.

    ReplyDelete
  6. Lilly looks fantastic! Wow, what a difference. Thank God for the person that thought of the NG tube. Keep growing little one. We are all pulling for you:o)

    ReplyDelete
  7. Haven't seen a baby more pretty than Lilly:-)
    And those eyes! She's a natural model for pictures, so cute ! :-))

    ReplyDelete
  8. I love Lilly! I love your family and your stories. I pray for you daily...for love and laughter and blessings daily. (Friend of Nikki's...FB)

    ReplyDelete