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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Wednesday, October 27, 2010

Drumroll please ...

Weight check = 6 lbs. !!!!!!!!!!!!!!!!!!

Yes folks it's amazing, it's incredible, Lilly finally weighs 6 pounds!!

"Oh, give thanks to the LORD, for He is good! For His mercy endures forever." Psalm 107:1

Lilly had an echocardiogram today and met with her cardiologist. She checked out great! Her heart looked good, the cardiologist said the pulmonary artery band fit perfectly (and he complimented the surgeon's job on it), and there was no fluid buildup around the heart or lungs.

He reduced Lilly's Lasix medication to one dosage a day and said we could stop the Aldactone. (That means she'll now be on "only" 4 medications.)

Out of curiosity I asked was the size of Lilly's VSD (hole in her heart) was. He said it looked like it was at least 9 mm. (That is considered very large.)

Lilly goes back for a checkup in one month.

On a completely different note, in this last picture, Lilly is reminding everyone to get out and vote! (She's wearing her "I voted early" sticker.)

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9 comments:

  1. odd ballOctober 27, 2010 at 9:56 PM

    Dear dollbaby, I shall not vote early but , indeed I shall vote. Thanks for the reminder.
    now the next goal is, 6lb 9oz, cause this is what your daddy weighted at birth, and look how big he is now!
    I was so happy for you, I cried...but tears of joy.
    xxooxxoo mj

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  2. NikkiOctober 27, 2010 at 11:04 PM

    Yay, Lilly! She looks BIG in that first pic... comparatively speaking anyway. :)

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  3. cOctober 27, 2010 at 11:50 PM

    what a good little 6lb citizen she is! I LOVE how plump her checks are looking!PRAISE OUR WONDERFUL GOD!

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  4. Jo WilliamsOctober 28, 2010 at 7:00 AM

    She's looking great - YEA for getting to 6 pounds!!!

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  5. ChadOctober 28, 2010 at 7:35 AM

    yay for lilly:) i love the picture with the 6 lb. sign!!!!

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  6. MicheleOctober 28, 2010 at 8:40 AM

    Way to go, Lilly!!! We love you bunches and bunches!!

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  7. Mallorie's MommyOctober 28, 2010 at 8:47 AM

    Good job sweet girl! Keep it up! Glad to hear your visit with the doctor went well. We praise God for you and pray for your continued growth and strength.

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  8. JDTSOctober 28, 2010 at 12:12 PM

    How wonderful...the weight achievement and the good dr visit! Thank you for keeping us updated and we are definitely praying for you.
    Lilly, your lil cousin Timothy sends you a big slobbery kiss!
    Love, Cousin Deborah

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  9. AnjaOctober 28, 2010 at 2:29 PM

    I vote for you Lilly :-)

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