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The story of our precious little girl's 17 months of life with Trisomy 18 (July 4, 2010 - December 15, 2011) and of us, re-learning to live "after Lilly."
"I will praise you for I am fearfully and wonderfully made ...." Psalm 139:14

Friday, October 8, 2010

Safely home

We made it safey home to N.C. today. I realized one big plus to the NG tube feeding is that we never had to stop to feed Lilly. I just hung up her little backpack with the pump and milk and refilled as needed!

The journey back went smoothly enough. It feels good to be home but wow - is there a lot of unpacking to do. Seems we came home with about six times the amount of stuff we left with!

We are greatful to the Lord for His travel mercies and especially for letting us bring a healthier Lilly back home with us!

9 comments:

  1. hope you all had a restful sleep in your own beds last night.
    tabby rose, keep taking good care of baby lilly.
    pa and i will be home tomorrow and he is looking forward to seeing
    you, lilly and hunter. miss you all!
    love,
    mah mah

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  2. *smiling* and passing hugs all around!!! xxoo

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  3. GOD IS GREAT, GOD IS GOOD
    enough said except I love you all
    mj

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  4. amen to what mah mah, nikki, and mom said!!!!

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  5. thinking of you all and sending our love.

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  6. So glad the Lord blessed you with a safe trip home after those 3+ weeks in Jax. May this be a time of refreshing until the open heart surgery. We'll continue to keep Lilly and your family in our prayers.

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  7. So happy you made it home safely - nothing better than getting home after being away and getting back into your "normal" routine!

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  8. Happy you all made it home safely. A big step forwards!
    Best wishes and lots of love and hugs from me to you :-)

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  9. So glad your journey home was smooth. I am praying that all continues to go well with Lilly. I am asking God to her help increase in weight and strength so that she might endure the upcoming surgery. She is such a blessing!

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